Our escapade with Sarah, our 3-year old, started on Tuesday night when we found a bump on her abdomen. After talking with our doctor's office, we thought she might be a little "backed up" since her play had increased with the nice weather but her fluid intake had not. With complaints of a tummy-ache throughout the night, we decided to take her into the doctor's office on Wednesday.
Our theory of constipation changed to one of a possible hernia and a referral for an ultrasound. While at the imaging center, we received word that the swollen abdomen was due to a Wilm's tumor. With films in hand and a lot of questions in our heads, we headed for Children's Mercy - Downtown for admittance. This is what has developed over the past 24 hours:
She has a Wilm's tumor which is a cancerous growth on a kidney. It occurs in children typically between 3-8 years old. The CT scan shows that it has spread into the major viens/arteries to the heart and leg and into her lungs.
On Friday she will under surgery to remove her kidney with the Wilm's tumor and "clean" the veins/arteries. They will also explore to see if there is further spread not seen on the CT scan. She will then undergo chemotherapy to attack the growths in her lungs and potential other sites. A port will be implanted during surgery through which her future labs and meds will be drawn/delivered. We don't have a definite treatment plan until surgery and pathology reports are complete, but the doctor said to expect it to be a year or two for treatment.
We have been humbled by the extraordinary outpouring of support from family, friends, neighbors, and co-workers. It is times like this we realize how blessed we are with such wonderful people in our lives. You may not realize how reassuring your words and actions of support and encouragement are to us. We will never be able to thank you enough. We will keep you posted as to the developments in Sarah's condition. Thank you & may God continue to bless you all!!!
The Macy Family - Steve, Joan, Catherine, Isabelle, & Sarah
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