Kiley B, youngster with Brain Tumor

UPDATE APRIL 11, 2014 AM

Cruising right along

By sheri burnett — 6 hours ago

Just a quick update to let you know things are progressing nicely.  Kiley is improving in every aspect.  We are excited to be going home on Saturday and are already planning a picnic.  Kiley is having a few issues with her vision so be praying that we get to see a neuro ophthalmologist  soon and that it is an easy fix.  We are really looking forward to a few days at home before we begin radiation, chemo and outpatient speech, occupational and physical therapy (no rest for the weary).  Thank you for your continued prayers.  We are blessed to have each and everyone of you in our lives.  Sheri

UPDATE APRIL 5, 2014 PM

Best Day Ever!

By sheri burnett — 37 minutes ago

Yesterday Kiley walked to and from physical therapy with only the use of a cane! This was HUGE!  She barely even had to use her wheel chair all day.  The feeling and movement in the hip and knee is really improving, now we are just praying for movement in her ankle and foot to follow suit. Her short term memory appears to be improving as well.  She is having some small issues with her vision which we have yet to figure out.   She has backed off of her pain meds substantially and is feeling all around really good.  Your prayers are being felt in big ways.  We are at peace and are finding joy in life.  Next week she will be getting her staples out and meeting with the radiologist and oncologist again about her treatment.  The oncologist is also looking for a clinical trial that she could participate in alongside her chemo and radiation.  Please pray if this is what we are suppose to do that it would be clear and if so that she would be the one to receive the treatment as opposed to the placebo.  Also continue to pray for Megan as she had to go back home and to work, and for Curtis as he is trying to finish his semester at school.  One more thing Kiley was one month away from finishing her masters at Baylor and we are hoping that the school will be able to work with her to make her graduation possible.  Please pray all the pieces fall together to make this possible.  Bottom line we couldn't do this without you!  We are putting one foot in front of the other only because of your prayers and God's provision.  Thank you.

UPDATE APRIL 1, 2014 PM

First day of rehab

By Bruce Burnett — 12 minutes ago

Kiley really enjoyed her therapy today and they pushed her pretty hard! She even had music therapy - although with the Burnett music genes they may not have any success with that. LOL. 

However, soon after therapy was over she began having strong spasms on her right side (her weak side) and ultimately her whole body was shaking uncontrollably This lasted for over 2 hours. This was obviously stressing her out and further compounding the effect. medicine finally got it slowed down and she could sleep. The therapy today was probably just too much too soon after surgery. Pray that tomorrow goes better and she will be able to do some level of therapy but without this result at the end of the day. 

Thank you for your prayers.  Bruce.

UPDATE March 31, 2014 PM

Please offer a rosary for Kiley B...

To pray a Rosary...click Come Pray the Rosary.

Thank you Richard Bockwinkel

UPDATE March 26, 2014 PM

I would like to thank everyone who prayed for Kiley Burnett today. The surgeons were able to remove 60% of her tumor and place some chemo wafers in the tumor capsule. These wafers will work directly on the tumor as they dissolve. She still has a long way to go but can move all her fingers and toes which is a great sign. Thank you again for your prayersI would like to thank everyone who prayed for Kiley Burnett today. The surgeons were able to remove 60% of her tumor and place some chemo wafers in the tumor capsule. These wafers will work directly on the tumor as they dissolve. She still has a long way to go but can move all her fingers and toes which is a great sign. Thank you again for your prayers

Tks...Sue Signaigo

UPDATE March 26, 2014 AM

Crank up the prayers.

Kiley will be operated on today at St. Louis University Hospital.

The surgeons will remove as much of the tumor as they can and then treat with radiation and chemo.

Unfortunately, more cancer was found at her brain stem.

Later,

Robert

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Dear PG...the "Sigs"...are my family, though not by blood...simply because they are "like" family in every way...except we never fight (I value my health ;-).  Anyway...PLEASE pray for this little girl...Please.

On Mar 21, 2014, at 2:05 PM, Bob S III wrote:

Rick,

I know you have enough to do, but, add Kiley B. to the prayer list.

This is John and Cindy’s niece and the docs just found a brain tumor about the size of a plum.

She is just starting this journey, sooooo…..prayers to her, her family and the doctor team for a safe and quick journey.

Bob Sig III

Prayer for Kiley B...

Almighty and merciful Father, by the power of Your command, drive away from Kiley B. all forms of sickness and disease.  Restore strength to her body and joy to our spirit, so that in her renewed health, we may bless and serve You, now and forevermore.  Amen.